Spinal Tap!

Today brought good and bad news. First the good news, the second MRI showed that Hailey’s brain development was normal. We can conclude, I suppose, that Hailey’s seizures are not caused by her immaturity, as originally suspected.

To the bad news, since the MRI shows nothing abnormal, the doctors must search for another cause. They have drawn blood, taken a urine sample, and regretably performed a lumbar tap (a.k.a. spinal tap). The longest 30 minutes so far has been during the spinal tap. They will be looking for a chemical imbalance or genetic cause for the seizures. It will take 3 weeks for the spinal tap results to return.

Hailey has started to show the behavior that she had before she started taking phenobarbital. She has rolled her eyes back into her head, had a few muscle flenches with her hand, and began to cry out in her sleep. Sanna calls the hand muscle flenches “door knocking” because it looks like she is knocking on a door. Hailey does this only while sleeping so far.

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