The Waiting Game

Hailey isn’t eating as well as she did while on the phenobarbital. She
is more irritable and gets fussy more often. I think that she is more
alert while off the phenobarbital though. She will look around for me
when she hears my voice or a startling sound. She seems very sleepy
but does not sleep for long periods of time. I think it is do to the
noise and trama of being in this place. She only seems peaceful and
secure when Mommy is holding her.

I thought for a moment that we might get out of here today. Cathy,
Hailey’s nurse, came by to see how much formula we had. We told her we
had six more ready to use bottles and she said she would hold off on
ordering more because she wasn’t sure that we would be staying
longer. Unfortunately, the other nurse came in about an hour later
with a box of formula and said we would be here until Friday. We
haven’t seen the doctors yet, the nurse thought they might be
reviewing the EEG data.

The doctors returned to reveal some of the lab data. The test that
return early have all been normal. We don’t know the results of the
extended tests but they seem to think that they may be normal
too. They will review more of the EEG data this evening or tomorrow
and decide if we should return home on phenobarbital or nothing at