Day 4 was a day of mostly happy news. When we first arrived Brianna was disappointed to see that they had placed an IV into Katie’s head. They had done this with Hailey and it took almost 2 years for the hair to grow back from where they shaved it. The IV in the head normally lasts longer because it is moved less. I hope this is the last IV they will need to start.
I was able to cheer her up when I noticed that they had removed the nasal cannula. At 6:00 pm yesterday they took Katie off her nasal cannula. She has breathed all night and all morning on her own.
Katie has had two incidents where she has lowered her heart and respiratory rates allowing her blood oxygen levels to drop, in both cases she has recovered on her own.
Katie’s billyruben levels had peaked and had fell to 9.2 at the last test.
They have raised Katie’s feeding rate to 20 ml up from 15 ml per feeding. She did not do well with bottle feedings through the night so the nurses had to use the feeding tube that is now in her nose. Katie did not do the bottle well for the 11:30 a.m. or 2:30 p.m. feedings.
When we arrived for the 2:30 p.m. feeding, we were happy to find out that Katie had been taken off of the phototherapy light. She is now over jaundice.
We met with her doctor before leaving at 2:30 p.m. Katie needs to learn to coordinate suck-swallow-breath and then she can put on some weight. Then we can start thinking about going home.
At the 5:30 p.m. and 8:30 p.m. feedings Katie took all of her feedings from her bottle in less than 10 minutes.